Evans Syndrome Handout
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Evans Syndrome Handout

Evans Syndrome is a rare autoimmune disorder where the body's immune system destroys red and white blood cells, as well platelets. People with Evans Syndrome may experience Thrombocytopenia, a condition where the blood has too few platelets, and Coombs' positive Hemolytic anemia, a condition in which red blood cells are destroyed prematurely.What is Evans Syndrome?Symptoms of Evans SyndromeThough Evans Syndrome is rare, occuring in 1 out of roughly 80,000 people in the U.S.(including children), it still has greater effects on those who have it. There is currently no cure for the disorder, and those affected usually fall through periods of (being sometimes very intense in nature) exacerbation and remission, which can be very hard on the body. Children's quality of life can be very negative with Evans Syndrome, making it hard for them to develop socially, emotionally, and physically. Treatments include corticosteriods, an immune system supressant, IVIg therapy, which includes injection of antibodies from other people, splenecotmy, and bortezomib, a drug used to kill cancer plasma cells.Prevelance and TreatmentHaving a child with Evans Syndrome can be challenging for the whole family. What's important to remember is that your child's body, and subsequently their mind, is compromised. They may feel down about missing out on activities and events due to their exacerbations or general feelings of unwellness, so it is important to remind them that they will feel better soon to return to those activities. School may be difficult to factor in, especially with rapid and onset periods of remission and exacerbation. Working with your child's teacher(s) to find a working schedule is an idea worth pursuing for your child's physical inclusivity in class and for their educational success. Normalcy may not always be a reality, but exercising the greatest support possible for your child will always prove fruitful for your child's emotionally wellbeing.What To Do As a Supportive FamilyEvans SyndromeVictoria FellowsEDC 414Pale skin colorLightheadednessShortness of breathUnexplained bruisingGreater susceptibility to infectionsDarkened urineRapid heartbeatJaundicePurpura (rash of purple spots due to interal bleedingCytopenia (abnormal low level of bloodcells)Neutrophils (low level of white blood cells)AnemiaFatigueThis resource outlines treatment, symptoms and experimental treatment used for Evans Syndrome.This resource lists the causes of Evans Sydrome, as well as its treatment plans and symptoms.https://rarediseases.org/rare-diseases/evans-syndrome/#:~:text=Evans%20syndrome%20is%20a%20rare,in%20the%20body%20(cytopenia).https://rarediseases.info.nih.gov/diseases/6389/evans-syndromeThis resource details a studied conducted that offers new insight to the disorder based on the subjects in the study.https://ashpublications.org/blood/article/114/15/3167/124927/The-spectrum-of-Evans-syndrome-in-adults-newThis resource details an account from a Michigan doctor who dug into his medical fellowship learnings to help a child with Evans Syndrome.https://www.childrensdmc.org/about/our-stories/all-our-stories/our-stories/coles-evans-syndrome-story
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publish time: 2021-04-21
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Here is a handout about Evans Syndrome. Evans Syndrome is a rare autoimmune disorder where the body's immune system destroys red and white blood cells, as well as platelets. People with Evans Syndrome may experience Thrombocytopenia, a condition where the blood has too few platelets, and Coombs' positive Hemolytic anemia, a condition in which red blood cells are destroyed prematurely. Though Evans Syndrome is rare, occurring in 1 out of roughly 80,000 people in the U.S.(including children), it still has greater effects on those who have it. There is currently no cure for the disorder, and those affected usually fall through periods of (being sometimes very intense in nature) exacerbation and remission, which can be very hard on the body. Children's quality of life can be very negative with Evans Syndrome, making it hard for them to develop socially, emotionally, and physically. Learn more details from this handout now!

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